Turner Syndrome Society of Minnesota

A nonprofit organization

7 donors

Our Mission is to "Create awareness, promote research and provide support for all persons touched by Turner syndrome."


Turner syndrome (TS) is a chromosomal condition that describes girls and women with common features that are caused by complete or partial absence of the second sex chromosome. The syndrome is named after Dr. Henry Turner, who was among the first to describe its features
in the 1930's. TS occurs in approximately 1 of every 2,500 female births and in as many as 10% of all miscarriages.


Short Stature 
The most common feature of Turner syndrome is short stature. The average height of an adult TS woman who has not received human growth hormone treatment is 4’8”.
Individuals tend to be a little shorter at birth, averaging 18.5” compared to an average of 20” for all girls. Growth failure continues after birth, and most girls with TS fall below the normal female growth curve for height during early
childhood.


Premature Ovarian Failure 
Most (90%) TS individuals will experience early ovarian failure. In the general population, the ovaries produce eggs and hormones necessary for the development of secondary sexual characteristics. Estrogen replacement therapy is necessary for breast development, feminine body contours, menstruation and proper bone development. The majority of individuals will require estrogen from puberty until the normal age of menopause. Fertility without assisted reproduction therapy is rare (less than 1%)..


Other symptoms/characteristics of
Turner syndrome:


  • Congenital heart defects
  • Renal abnormalies
  • Hypertension
  • Conductive and sensorineural hearing loss
  • Mild malformation of outer ear and low set ears
  • Speech problems
  • Strabismus, amblyopia and ptosis
  • Dental abnormalities (narrow, high arched palate)
  • Obesity
  • Lymphedema
         (webbed neck, edema of hands and feet)
  • Nonverbal, visual-spatial processing learning disabilities


Creating awareness, promoting research
and providing support for all persons touched by Turner syndrome.” is the mission of the Turner Syndrome Society


We are the MN Chapter which was founded in 1983.


Our members are from all over the state of MN. We hold meetings in locations around the Twin Cities area.


Our current MN Chapter President was diagnosed at age 16 and is co-founder of the Turner Syndrome Society. We have grown into a National organization, awareness has increased, treatment gains have been made, and we are able to offer support to more woman and families so no one need feel alone in dealing with the diagnosis.


At the 2014 TS annual conference and first  TS medical symposium on July 13-14, 2013, in Jacksonville, FL. “The primary goal of the
symposium will be to discuss a national strategy aimed at coordinating health care delivery and incorporating fundamental TS research through regional TS resource centers.”
stated Michael Silberbach, MD, and chair of the Professional Advisory Board.

Organization Data

Summary

Organization name

Turner Syndrome Society of Minnesota

Tax id (EIN)

41-1636412

Address

5936 Kellogg Ave
Minneapolis, MN 55424