Scleroderma Foundation Minnesota Chapter

A nonprofit organization

$770 Raised by 9 Donors

8% complete

$10,000 Goal

Support. Education. Research



A Letter from Our Board President

Most of us reading this understand that scleroderma is a terrible disease. When a person is diagnosed with scleroderma the world they know changes forever. It is understandably a shock that can lead to depression and an overwhelming sense of loneliness. It is a hard disease to describe in one sentence - unlike cancer or diabetes people may not react with the same sense of empathy or urgency. Currently, scleroderma is a disease that most people have not heard of and is often underfunded. On behalf of the entire Board of the Scleroderma Foundation Minnesota Chapter, we are so proud of the work we are doing to change this. Our work, which includes the efforts of all of you, really matters.

Many of our MN Chapter support group members find that their monthly meetings with others who have the disease is a place where they can feel true community with others who “get it”. They find resources, listen to guest speakers, or just listen to each other’s concerns. This can make a huge difference in daily life. Our members don’t know what the future will hold, but they do know that they are not alone.  

This year, again due to COVID19, we have had to make adjustments to our one and only fundraising event of the year - Stepping Out To Cure Scleroderma 5k Walk - going VIRTUAL .  We are hoping that people will still support us, just within their own "bubble".  We need support more than ever,  2020 was rough, our fundraising was down by 50%.  

To further scleroderma education, we hold an informative Patient and Family Health and Wellness Conference typically in the fall.   With your help, we hope to be able to expand our reach.  

Your generosity will make a meaningful difference to the Scleroderma Foundation Minnesota Chapter. It will enable us to continue to serve the scleroderma community by raising awareness, supporting and educating patients and providers, and sending desperately needed dollars to research. Your donation will inspire hope in the incredibly deserving scleroderma patients here in Minnesota. 

In gratitude, 

Kris Maas
President of the Board of Directors

Scleroderma Foundation Minnesota Chapter


Organization Data

Summary

Organization name

Scleroderma Foundation Minnesota Chapter

Tax id (EIN)

41-1802254

Address

P.O. Box 240244
Apple Valley, MN 55124

Phone

877-794-0347

Social Media 0

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