Relapsing Polychondritis Awareness And Support Foundation

Get to Know Us

Our Foundation is unlike any other Foundation for Relapsing Polychondritis which have come and gone before us. This entity had been just a dream for many suffering from this relentless disease. Being incurable and progressive, there is a constant need for a unified, proactive voice for current and future patients, as well as their supporters. After many months of discussion and planning, The Relapsing Polychondritis Awareness and Support Foundation, Inc. was officially launched in April, 2013. Despite having no “seed money” and led by four RP patients, the Foundation has received a tremendous show of support. We have a very long road to travel. However, we also have the determination and dedication to make this grow and prosper. We intend to be the “long arm” and the “voice” for the ever-growing RP community.

Our Mission

Advocating increased Awareness and Support for persons affected by Relapsing Polychondritis.

The Relapsing Polychondritis Awareness and Support Foundation, Inc. is a non-profit organization dedicated to supporting and advocating research, providing patient and family assistance and educating the general public and medical communities an increased awareness and support of Relapsing Polychondritis.

 

Our Vision

• Relapsing Polychondritis Awareness and Support Foundation’s vision and guiding principles on which our advocacy initiatives are based:
• A global awareness and support of the challenges faced by people living with Relapsing Polychondritis and the associated awareness, support and costs to society and the medical community as a whole.
• A world where people with Relapsing Polychondritis can secure access to shared information and support through patient experiences and support. Providing assistance to the patient community to secure specialty physician services and diagnostic services relevant to their wishes and geographical location in order to extend and improve their lives.
• A social and financial culture of innovation that supports both the basic patient communities interactive support and information regarding physician access, physicians in translational research facilities for diagnostics and therapies for all patients with Relapsing Polychondritis.

A Web based environment that encourages and supports physician awareness and access to timely resources of safe and effective diagnostics and treatments for patients with Relapsing Polychondritis.