Pcd Ks Foundation

A nonprofit organization

4 Donors

Help Us 'Move 4 a Cure!' for Primary Ciliary Dyskinesia (PCD)


Mission

The mission of the PCD Foundation (PCDF) is to support increased research, accelerated diagnosis, improved health and, ultimately, a cure for primary ciliary dyskinesia. 

Programs

1. PCD Clinical & Research Centers Network: An initiative to create expert centers for diagnosis, research and care for individuals with PCD. Currently 29 North American sites and growing. 
2. Research acceleration: The PCDF partners with academic researchers and funders around the world to accelerate research on PCD, focused on finding a cure.
3. Patient education: Through print and online outreach and family events, the PCDF is committed to ensuring individuals with PCD have access to state-of-the-art information about their disorder.

What is PCD? 
PCD is an umbrella term for 'primary ciliary dyskinesia,' a rare genetic disorder that affects the motile (moving) cilia that line the respiratory tract, reproductive organs and ventricles of the brain. When these cilia don't move, chronic lung damage occurs--starting in childhood. People with PCD can also have a variety of birth defects because ciliary motion is required to assist with organ placement in a developing embryo. Infertility is also an associated condition. 'Move 4 the Cure' is a campaign to bring awareness to the PCD community and to the devastating physical impact that occurs when cilia don't move.  




Organization Data

Summary

Organization name

Pcd Ks Foundation

Tax id (EIN)

20-0543474

Address

10137 Portland Ave S
Minneapolis, MN 55420

Phone

952-303-3155

How can we help?

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