Pcd Ks Foundation

Help Us 'Move 4 a Cure!' for Primary Ciliary Dyskinesia (PCD)

Mission

The mission of the PCD Foundation (PCDF) is to support increased research, accelerated diagnosis, improved health and, ultimately, a cure for primary ciliary dyskinesia. 

Programs

1. PCD Clinical & Research Centers Network: An initiative to create expert centers for diagnosis, research and care for individuals with PCD. Currently 29 North American sites and growing. 
2. Research acceleration: The PCDF partners with academic researchers and funders around the world to accelerate research on PCD, focused on finding a cure.
3. Patient education: Through print and online outreach and family events, the PCDF is committed to ensuring individuals with PCD have access to state-of-the-art information about their disorder.

What is PCD? 
PCD is an umbrella term for 'primary ciliary dyskinesia,' a rare genetic disorder that affects the motile (moving) cilia that line the respiratory tract, reproductive organs and ventricles of the brain. When these cilia don't move, chronic lung damage occurs--starting in childhood. People with PCD can also have a variety of birth defects because ciliary motion is required to assist with organ placement in a developing embryo. Infertility is also an associated condition. 'Move 4 the Cure' is a campaign to bring awareness to the PCD community and to the devastating physical impact that occurs when cilia don't move.