Siegel Rare Neuroimmune Association

A nonprofit organization

312 donors

Transverse Myelitis is a rare neurological disorder that is part of a spectrum of neuroimmunologic diseases of the central nervous system.


Mission

Transverse Myelitis is a rare neurological disorder that is part of a spectrum of neuroimmunologic diseases of the central nervous system. Other disorders in this spectrum include, Acute Disseminated Encephalomyelitis (ADEM), Optic Neuritis, and Neuromyelitis Optica (Devic's disease) and Acute Flaccid Myelitis (AFM). The membership of Siegel Rare Neuroimmune Association includes persons with all of these disorders, their family members and caregivers and the medical professionals who treat people with these disorders. Our mission is to facilitate support and networking opportunities amongst those persons affected and their families; provide educational information; function as a clearinghouse for articles and research literature; and investigate, advocate for and support research and innovative treatment efforts.

Programs

SRNA publishes a magazine for our members twice a year, which contains articles by physicians and health care providers. There are also articles written by people with the rare neuroimmunologic disorders. SRNA assists in the development of local support groups and is involved in various fund-raising efforts, such as Reading for Rachel, to raise awareness and funds for research. SRNA supports and conducts various symposiums and workshops involving both professionals and patients for the exchange of information regarding research and treatment strategies for persons with the rare neuroimmunologic disorders of the central nervous system.

Organization Data

Summary

Organization name

Siegel Rare Neuroimmune Association

Tax id (EIN)

91-1780467

Address

PO Box 826962
Philadelphia, PA 19182-6962

Phone

18553803330

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