Summary
Organization name
Lupus Research Foundation
Tax id (EIN)
81-5446248
Categories
Health
Address
9250 Lincoln Street NEBlaine, MN 55434
Thank you for your support !!!
Our mission is to cure lupus in 7 years.
Lupus is life threatening. There is currently no cure. It causes organ failure, joint pain, and fatigue. It affects 1 in 210 people, 90% of which are women. It is more common in people of color. Lupus more prevalent than AIDS and MS combined.
Our founder, Regan Birr, has lupus. She was very ill, with kidney disease caused by lupus, and received chemotherapy even though she didn’t have cancer, for 2.5 years. The chemo put her into remission and suppressed her over-active immune system. She still takes medication every day, and is driven to help find a cure.
We are racing against the clock for a cure so no other young person will have to go through what Regan did. Your support will help!
For several years we have funded Dr. Timothy Niewold, Director of the Colton Center for Autoimmunity at NYU Langone Medical Center.
He is a world renowned research rheumatologist and geneticist.
With your support we can accelerate his research. Recently his work contributed to the development and trial of a drug by AstraZeneca that received VERY positive results in a Phase III (human) clinical trial. This means there may be another dedicated lupus drug coming to the market! This is incredible as currently, there is only ONE.
We are blessed to run the largest Professional-Amateur curling tournament in the world, “Lupus Spiel USA”.
Lupus Spiel USA is our flagship event. It is held every May in Blaine, Minnesota, at Fogerty Arena Four Seasons Curling Club. It sees 300 participants, Olympic Curlers, local celebrities, and people from all over the metro area. Supportive celebrities include Jordan Leopold, retired NHL player for the Minnesota Wild. It provides great visibility of lupus, and education about the disease as well as a chance for our supporters to shine.
Join us as we advance our discovery for a cure for lupus.
If you'd like more information about how you can support the foundation or Lupus Spiel, please contact Regan at: 720 470 8049 or reganbirr@gmail.com.
Thanks for your support!
Very truly yours,
Regan
Organization name
Lupus Research Foundation
Tax id (EIN)
81-5446248
Categories
Health
Address
9250 Lincoln Street NE