The ALS Association, MN ND SD Chapter

To discover treatments and a cure for ALS, and to serve, advocate for, and empower people affected by ALS to live their lives to the fullest.

ALS (amyotrophic lateral sclerosis) is a degenerative disease of the central nervous system, characterized by the death of the motor neurons. ALS results in gradual, progressive weakness and wasting away of voluntary muscles, often leading to total paralysis. The life expectancy of a person living with ALS is usually two to five years from diagnosis. There is no known cause or cure for ALS, but advances in medical technology are allowing people with ALS to lead more independent and productive lives. The ALS Association is the largest private funder of ALS research worldwide, and our efforts have led to some of the most promising and significant advances in ALS research as we search for treatments and a cure.  

The ALS Association MN/ND/SD Chapter provides a range of programs and services at no charge that meets the unique and evolving needs of the ALS community, including our Durable Medical Equipment Loan Pool, the Hrbek-Sing Communication and Assistive Device Program, the Jack Norton Family Respite Program, and the Home Safety Program. We also offer support groups, a volunteer program, a media library, national and state advocacy, consultation, and support while contributing to global research activities. Our Chapter supports four certified treatment centers of excellence, two recognized treatment centers, and three other ALS clinics in our service area. Our programs and services promote continued engagement with family, friends, and neighbors through improved mobility, communication, and independence.

In the last year, generous support has allowed us to accomplish the following:

• We served more than 740 individuals living with ALS
• 334 people borrowed augmentative communication devices not covered by medical insurance
• 6,000 hours of skilled, professional respite care was provided so caregivers could take a break
• 2,800 pieces of medical equipment were checked out from our loan closet
• 46 families received home visits and safety recommendations from therapists
• 50 people whose lives have been touched by ALS connected with others at one of our monthly support groups
• 232 families who have experienced loss related to ALS were served by our bereavement program
• The ALS Association managed over 162 active research projects with a multiyear commitment of over $55 million