The ALS Association, Minnesota, North Dakota, South Dakota Chapter

A nonprofit organization

915 Donors

To discover treatments and a cure for ALS, and to serve, advocate for, and empower people affected by ALS to live their lives to the fullest.

ALS (amyotrophic lateral sclerosis) is a degenerative disease of the central nervous system, characterized by the death of the motor neurons. ALS results in gradual, progressive weakness and wasting away of voluntary muscles, often leading to total paralysis. The life expectancy of a person living with ALS is usually two to five years from diagnosis. There is no known cause or cure for ALS, but advances in medical technology are allowing people with ALS to lead more independent and productive lives. The ALS Association is the largest private funder of ALS research worldwide, and our efforts have led to some of the most promising and significant advances in ALS research as we search for treatments and a cure.  

The ALS Association MN/ND/SD Chapter provides a range of programs and services at no charge that meet the unique and evolving needs of the ALS community, including our Durable Medical Equipment Loan Pool, the Hrbek-Sing Communication and Assistive Device Program, the Jack Norton Family Respite Program, and the Home Safety Program. We also offer support groups, a volunteer program, a media library, national and state advocacy, consultation and support while contributing to global research activities. Our Chapter supports four certified treatment centers of excellence, two recognized treatment centers and three other ALS clinics in our service area. Our programs and services promote continued engagement with family, friends and neighbors through improved mobility, communication, and independence.

In the last year, generous support has allowed us to accomplish the following:

  • Provided 1,448 pieces of communication equipment to 334 people who have lost their ability to verbally communicate.

  • Connected 393 individuals living with ALS to more than 3,052 pieces of equipment through our Durable Medical Equipment Loan Pool. 

  • Subsidized 8,752 hours of respite care for 94 caregivers who are supporting a family member living with ALS.

  • Engaged nearly 150 people in virtual support groups that provide education and support to people affected by ALS.

  • Distributed iPads and other technology to ensure that people living with ALS could stay connected with clinics, our Chapter, and their loved ones.

Organization Data


Organization name

The ALS Association, Minnesota, North Dakota, South Dakota Chapter

other names

The ALS Association MN/ND/SD

Tax id (EIN)





1919 University Ave W Suite 175
St. Paul, MN 55104



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