Team Gavin

To the naked eye, Gavin looks like an energetic, fun loving 6 year old that wants to be best friends with everyone that he meets.  What many don't know is that he is suffers from a genetic disorder called Neurofibromatosis.  NF impacts 1 in 3,000 people. There is no cure and most people know nothing about it.  Among other effects, NF can cause non-malignant tumors to grow anywhere along the nervous system.  Many that suffer from this disease show very few symptoms, but there are others that have many crippling limitations.  Gavin was diagnosed with NF1 at the age of 18 months and the diagnosis was confirmed through genetic testing.  So far, Gavin has been one of the lucky ones, only showing signs of some minor learning disabilities and some lagging in physical capabilities compared to his peers.  He sees specialists every 6 months to monitor his symptoms and has weekly physical and occupational therapy sessions to improve is strength, coordination, and fine motor skills.  Starting next school year Gavin will be working with a special education teacher to ensure he will have the best environment for him to learn in the academic setting.  

We are raising money to raise awareness for this disorder and fund research that will hopefully one day result in a cure.