The Organic Acidemia Association is a non-profit organization whose mission is to empower families and health care professionals with knowledge in organic acidemia metabolic disorders. We support early intervention through expanded newborn screening, solicit contributions and distribute funding that supports research toward improved treatment and eventual cures in the areas of Organic Acid disorders.
ProgramsWe sponsor a national conference every two years. We publish a newsletter three times a year, for a suggested donation of $25 per year for domestic membership and $35 for international. We also have a roster of families for $5 additional. We host an internet listserv, Facebook Group and website. We advocate newborn screening and support research efforts.
Donations are accepted to the Organic Acidemia Research Fund - a fund set up to support Dr. Chuck Venditti's research at the NIH on MMA and PA...and ultimately will help all of our organic acidemias.
Thank you for your continued and tireless support of finding a cure and better treatments for our organic acid disorders!